I'm The Dreamer

“You may be a dreamer, but I'm The Dreamer, the definite article you might say!”


What should I add about myself?


Well, I am a single Electrical/Computer Engineer currently in Manhattan, Kansas, where I work for Kansas State University as a Senior Unix Systems Administrator.


Kind of a transplant from Alberta, Canada (grew up in Calgary, first job - Computer/Research Engineer - in Medicine Hat of 8 years), but came to Manhattan, Kansas via 8 years in Dublin, Ohio - Software Engineer. But, things all started with my first year in Lawrence, Kansas....


Might see that I'm a Doctor Who fan. And, into other science fiction. Hopefully its obvious that I'm into computers, though I do run into people that think its a just a job...and not a good one. But, I love it. Also into technology, ham radio and gadgets. And, soon I plan to dive back into photography....


And, FWIW...I currently have severe obstructive sleep apnea, managed with CPAP. And, continuing EDS -- I could sleep for long periods...except it gets dotted with insomnia (mainly the staying asleep kind) -- and they say I'm not getting much/any deep sleep, which is being called Idiopathic Hypersomnia...but someday it might turn out to be a Hypocretin is present form of Narcolepsy. I do have the HLA-DQB1*0602 gene. Other things I've heard I have include: RLS, BPPV and Essential Tremor.


On May 10, 2012, I overshot my home by 3 blocks courtesy of ambulance taking me to the ER. On May 15, 2012, I received the diagnosis of Cataplexy. Why don't I feel better? Why do I feel worse?


Had to wait until July 12, 2012 for my diagnosis to be revised from Idiopathic Hypersomnia w/Cataplexy to be Narcolepsy w/Cataplexy and get seen by the only doctor that treats Narcolepsy in Manhattan and is in the Xyrem success program. Now things are getting better.


73, de W0LKC


Blog: http://lawrencechen.net

Blog 2: http://apnarcoplexic.com

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by john

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